Neurodegenerative Disease Biobank

Certification Status: Approved
Registration Status: Completed

The Macquarie University neurodegenerative disease biobank is collection of biological samples such as blood, saliva, skin, urine or hair from patients with neurodegenerative disease, as well as from unaffected individuals. Samples are linked to clinical and lifestyle information. Samples are stored and made available for research now and in the future. These are a valuable resource for researchers to increase our understanding of neurodegenerative disease with the overall goal to identify treatments and preventative measures. The primary focus of the biobank is Motor Neuron Disease

Registered Biobank Name Neurodegenerative Disease Biobank (ND Biobank)
Biobank Leader Judith Heads
Principal Investigator Prof. Ian Blair
Address F10A Building, 2 Technology Place,
Macquarie University, NSW, Australia
Email for biobank inquiries
User Type
  • Mono: A biobank that supports a specific research project, may have few staff members, a small-scale accrual scope with little to no initial intention of releasing or distributing biospecimens to secondary parties
  • Oligo: A biobank that supports several research groups or clinical trials, may or may not be designed to release biospecimens outside their collaborative group
  • Poly: A biobank that has generally a larger accrual scope, resources, and multiple users outside the biobank proper
Oligo - Collection aimed at supporting several research projects, a research group or a research consortium
Biospecimen Collected: